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It sounds like you really need to get off the steroids to save your eyes. Are your doctors looking at any other treatments? I have MuSK myasthenia gravis so there are very few options for treatment but I know there are several possibilities for acetylcholine antibody MG. I cannot have steroids because they cause hallucinations and the only treatment which has been effective was Rituxan infusions and they were very effective. I had two years of Rituxan and have had no further treatment for 2.5 years. I have minor symptoms daily, shortness of breath, fatigue, drooping eyelid but really am doing very well. I hope that your doctors will try to get you off the steroids because I hate that your vision may be threatened.