Myasthenia Gravis News Community › Forums › Healthcare and Treatments › What happens if I just stop medications? › Reply To: What happens if I just stop medications?
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Community Member
MemberI understand exactly what you’re feeling. I was diagnosed with MG 8 years ago and Neuro started the standard MG protocol of Mestinon, prednisone, CellCept, IVIG, and then infusions of Rituximab, and recommended Vyvgart and Ultomiris. Bottom line nothing helped, and I dealt with diarrhea, weight gain, insomnia, weakness and a lot of other things I never experienced before I was treated for MG. I myself with a “let’s try and see what happens” from Neuro, tapered off all the meds and began to remove each med one by one and finally stopped all 2 years ago. So far, nothing bad MG related has happened, I don’t feel better, but I don’t feel worst. My backup plan is Mestinon if minor symptoms occur, and priority order for IVIG or Plasma exchange if crisis sends me to hospital. My suggestion is to try tapering your MG meds and eventually drop one or two if possible. Good luck.