• Community Member

    Member

    I’m sorry I missed your question about the diet I follow. I eat plant-based and I think that allows me to tolerate the impact of my MG better. But that may be just me. But even if I wasn’t plant-based I’d follow a low-inflammation diet for several reasons. 1) an expert in aging told me that “an inflamed stomach is an inflamed brain and inflamed body.” Looking up the impact of an inflamed brain I found that symptoms of that include: cognitive issues (which resolved when I went on this diet), depression (which also improved greatly when I went on this eating routine), as well as the accompanying gastric issues. When I was getting started, I was constantly conferring with Dr. Google with questions like 1) what foods are good for a low-inflammation diet, 2) what foods should I avoid on a low-inflammation diet, and 3) questions about specific foods like: “Is watermelon inflammatory” or “are black beans inflammatory.” I was caught off guard with answers several times that were opposite from what I expected. For example, a good amount of citrus fruit is actually safe to eat on a low-inflammation diet.

    As far as Vyvgart, I had my 3rd infusion 3 days ago and so far I’ve had no negative side-effects. I am lucky that I generally respond quickly to medications and after the first infusion I was feeling a bit better. Now after 3, I feel like I have more energy both mentally and physically. I think it is really helping me. I’m sorry you are having or had such a negative experience with it.

    I hope you have a great weekend and find the perfect meds or life-style that makes this disease easier to live with.

    Love and Light,
    Frank