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What are anyone’s experiences in changing over from older immunesupressants to the newer compliment inhibitors ( Solaris or ultimoris or ziucoplan ) or FcRn (vygart or rystiggo/rozanolixumab). I am in Australia where there is limited experience and availability of these.
I take maximal doses of mycophenolate, rituximab, IVIG 4 weekly and Mestinon 180 mg every 3 h and require Mestinon more often in the last week of the IVIG cycle, or to exercise. I still get droopy eyes when reading/ watching Tv or driving or if I delay Mestinon, and leg greater than arm weakness and fatigue when I overdo it.
I’m worried the newer drugs may be no better than what I’m already on.
Do people get their compliment levels checked at all ? I know they get their IgG levels checked.