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My IVIG had been a good experience other than causing migraines, which I never had before. I’ve been feeling like I had the flu for a while now. My neurologist’s NP ordered labs drawn. They came back indicating anemia and abnormal kidney function. The labs were repeated 3 times to make sure there was no mistake made with the tests. I saw my PCP who informed me I’d developed stage 3A kidney disease. Since I’d never experienced this before, I began checking my medication info from the pharmacy. I also looked up Gammagard, which I received in my infusions 4 times per month.
I routinely read the information when I take a new drug, but often skim through the material. This time when reading the possible reactions Gammagard could cause, I saw there was a separate paragraph at the end of the information sheets. It said that Gammagard can cause kidney damage.
So, while I’m not sure Gammagard caused my kidney disease, it’s definitely a possibility. I am not diabetic which leaves one predisposed to kidney disease. I remember being asked if I had kidney disease before starting the infusions, but not being informed it can cause it.
Early kidney disease can have no symptoms. I’ve been taking the medication for a few years now. I’m seeing a nephrologist soon to see what can be done. The disease can’t be reversed, but medication can slow or even stop its progression. Meanwhile, I’m discontinuing my infusions.