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Hi Glen. My first round of IVIG was also 5 days. On the 3rd day I had the same reaction as you! Aspectic meningitis is what the nurses told me. Here’s why:
They ran the infusion rate way too fast. I’m a long day infusion gal. They have to go slow, which takes about 7 hours a day
I didn’t get a bag of saline hydration before each treatment. I do now! Hydration is one of those important steps for me. I get a saline bag plus I drink LOTS of fluid. I even drink a lot in the days after treatment
I was using Optigam which has a carrier ingredient in it my body doesn’t like. I now use Panzega.
I needed a course of prednisone during treatment, along with the Benadryl, Tylenol, and Zofran.
I always follow this routine now (I’m always a 5 day infusion about every 8/10 weeks)
Please start with looking at the rate of infusion! Too fast is too hard on my system anyways! Lower is better!
And REST. For me, a day of infusion = a day of serious recovery (and then some). It’s a hard treatment but is the only thing that works for me ♥️