Myasthenia Gravis News Community › Forums › Healthcare and Treatments › Vyvgart taken over 8 weeks not 4? › Reply To: Vyvgart taken over 8 weeks not 4?
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MemberFound it……………..so many times the company told me we have to take it every week, for four weeks then rest for 4-5 weeks then again…
I don’t think so, it’s all about the money isn’t it with big pharma. So today my nurse who has been doing this for many years basically admits to me (and I now must have had about 10–12 treatments all told, plus hytrulo that caused my IGG levels to go off the chart) that I will not see any major improvements going forward, what this does now is just keep my ailments in check??? Hmm. Time I think to try something else? Particularly to improve my exhaustion.
I’m just so tired first thing in the morning and even with my bipab machine and 6-8 hours of sleep, really struggling with this(albeit apneas supposedly way down) I wake up exhausted and find myself snoring whilst awake, called daytime apneas..anyone else have this? Crazy!!!