Myasthenia Gravis News Community › Forums › Life Hacks and Tips › Any Tips for managing diarrhea from Pyridostigmine › Reply To: Any Tips for managing diarrhea from Pyridostigmine
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MemberReading everyone here, I’ve picked up some good tips. Unfortunately (?) I have the opposite problem and have to work against becoming impacted. I can’t tolerate Miralax and am on a plant based diet to eliminate bad cholesterol, so my GI dr says I have a lot of plant fiber already, which should of been helping. I just started taking pepcid minimum at night before my Parkinson’s med to prevent the awful nausea, and Pantopraze sodium dr 20mg to help my stomach burning, which my MG neuro says is not caused by my pyridstigmine 60mg 3x day. My stomach does feel better and with 8-9 glasses of liquid a day, and taking my meds with food, I know that helps. No one can figure out why my bowels aren’t moving. All my drs said it was the MG and spina bifida since it involved nerves and muscles in my intestines, but my MG neuro said no, it’s the Parkinson’s, and that dr said no. I’ve got a new neurologist I’m going to see this month for another opinion on the Parkinson’s and seizures, so maybe he’ll have some insight. Meanwhile my GI dr said my CT abdomen scan showed only a thickened bladder wall, and my stool tests were normal, so he put me on Motegrity 20mg to try to get the muscles in my intestines to move better. No one’s offered any insight on the nighttime bladder frequency/ urgency. There’s no infection and the Parkinson’s dr said nothing. Interestingly, years ago I spent a week in the hospital with seizures and bowel impaction, and the colorectal surgeon told me to stay off plant fiber unless it was cooked really soft. So I’m going to give up the plant burgers and take some probiotics and see if that helps. I’ve been eating greek yogurt but it’s not enough. I’ve only been taking 2 of my pyrido a day, so I’m going to try the 3rd dose and see if it helps. I’ve had diarrhea issues in the past—it seems to come back every 5 years or so. I use kefir, probiotics and greek yogurt when it comes back, along with bananas, tea, bread products and jello/gummies to reset the flora and bulk up again. It’s just I’ve rarely ever been blocked up, only surrounding surgeries. The only thing I’ve had done recently is an endoscopy/colonoscopy in October in which I was put to sleep and a precancerous polyp removed. Maybe that was enough to slow my intestines down again but that’s been awhile ago. It’s always been a battle between the diarrhea/constipation. The joys of MG/Parkinsons/spina bifida/seizures. Not that I’m complaining lol 😂