• Community Member

    Member

    The only reaction I would get from IVIG was an afternoon/evening headache after day one’s infusion. Just an obnoxious headache, really. If I took a couple Tylenol, it would go away. Unfortunately, the IVIG lost its effectiveness with me after about a year or so. They have me on Vyvgart now and it’s working great. Gonna ride the wave as long as I can…

    I wonder if you may have coincidentally contracted a bug totally unrelated to the IVIG. I guess you won’t know unless you try it again (just remember the Tylenol ;-). Did they have you take some Tylenol and benedryl BEFORE each infusion? That might help. I guess that’s standard procedure for Kaiser when administering GammaGuard.

    I’m sorry that this happened to you. I hope you can get the full protocol next time and that it works for you. When I began a couple years ago, it was wonderful…and I know many folks vouch for its effectiveness after having been on it for years.

    Good luck to you.