Reply To: Zilucoplan

[Community Member]

I started Zilucoplan almost 3 years ago. the first 3 months were placebo, and then I started receiving the real thing.

it’s a miracle “drug” I have been stable for almost 2 years.

when I receive the injection in the morning, my eyes open, my posture straightens out and I can function.

I still have major breathing issues, pain, and fatigue. I don’t sleep well, and wake up during the night, trying to catch my breath.

unfortunately, I have other medical issues, which add to the stress in my body.

I’m now able to do physio, for almost the full hour.

i am grateful for every single injection.