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Hi Ewmimi , I’ve just started Zilbrysq myself. Trying to count the boxes in my head. Round 6 weeks now . It’s working well for me also. I was diagnosed with myasthenia gravis in 2006. I’ve pretty much done everything that there’s to do out there. I even did a high dose of Cytoxin in 2015 to reboot my immune system. Which really helped me for awhile. My journey started out like yours. I was a surfer and started to have lots of unusual eye lid ,speech and swallowing issues. I went to 5 different doctors looking for the problem. It took almost a year to get a diagnosis.
I am currently doing Plex twice a month and doing Zilbrysq injections 1 a day . If I were to say this is best so far I can’t just yet. But my eyes are doing so much better than they have in a while. I would love to chat more with you to see how you are doing. There is so much I’ve left out of my journey with MG but it doesn’t matter. MG Suck lol and we are looking for the cure! Lanette