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Ive been on it for 2 years, initially I noticed bloating, and had the nurse only dilute in the larger ml bag of sodium chloride, larger than 50 ml, but i dont currently have one for exact ml, i think 75 or 100. It’s salt you know? She removes the amount needed for the vyvgart then that is all we use except the flush and only uses 5-7 ml of the 10 ml plunger for that. This cuts the sodium by more than half. Makes a huge difference for me. Talk to you neuro and see if okay.
Then be sure to hydrate really well 2 days b4 and a day after, water.
This made a big difference form me. Are your kidneys in good shape?
Nurse say anything?
Good luck hope you find a solution as it is the miracle drug for me.
I was just approved to go 4 weeks on then start again on the 2nd week after. I was crashing really bad and thinks this will really resolve that.
Are you certain it is not an anaphylactic reaction? No bumps, breathing g issues?