-
I’ve had ocular MG four separate times. I am currently in fourth go around. The first case (Diplopia and ptosis) was treated with prednisone combined with Cellcept. I reached 30 mg before being put on 1000 mg Cellcept. I was taken off prednisone and continued with Cellcept until symptoms cleared and was declared in remission (about 9 months). I was also prescribed Mestinon, but could not tolerate the side effects. 8 years later, the second bout was fought only with prednisone. I achieved remission with a maximum dosage of 60 mg over about a one year period. 9 years later, the third bout was again fought with prednisone, I achieved remission at 40 mg for 9 months. This case left me with a case of central serous retinopathy in my right eye. The current case, after 3 years, is being fought with Cellcept and Mestinon. I’m about 5 weeks into treatment with Cellcept and have seen a stabilization of both the ptosis and diplopia. I need to have safety blood work monthly because of the Cellcept, but it is a small price to pay for not using Prednisone.