Myasthenia Gravis News Community › Forums › Additional Resources › What money can buy? › Reply To: What money can buy?
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MemberMy biochemist friend says we could be treated with what are called “Orphan Drugs.” They are called this because there are not enough people needing the drugs to justify the millions of dollars to pay for the research. Either no research is done, the price goes into the hundreds of thousands of dollars over a lifetime, or existing drugs are used off-label (or as my pharmacist said, as he handed me my CellCept, “How did your kidney transplant go?”)
The space race in the 60’s paid off in spades even though we couldn’t anticipate all the new technology that would fall out.
I’d like to see a system where a researcher could follow up a hunch, or look for possible alternate use for a unexpected experimental result, without having to jump through hoops to get funding,