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That is a very personal ultimate decision, of course! However, there is no harm in being open with your daughter so she doesn’t become silently worried. Be as honest as you feel her level of maturity is ready for, or let her do the question-asking. To keep emotions neutral towards the situation, as it appears you are trying to keep all of this normal for her, add a positive to balance anything scary, worrisome, or overwhelming you may share with her. Such as, when sharing treatment you may go through, talk about the chance at improvement and that you are just partaking in self-care. Talk about the life lessons you are learning from this disease. Keep it uplifting. When you have a better day, let her know it is because of the treatment and rest so she can start associating healthcare as not scary but caring for yourself. https://forumsstg.myastheniagravisnews.com/columns/my-son-speaks-out-living-with-his-moms-myasthenia-gravis/ This new article may also interest you 🙂
– Jodi, Team Member