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Hi Michelle,
I have a very severe case of generalized MG, coming down with it 9 years ago. For me, IVIG has made all the difference in the world. No, I didn’t get my old life back, but what I have today isn’t that bad. I receive infusions four times every 28 days, plus take Mestinon four times per day.
Best of luck to you in coming up with the best course of treatment. I’ve never heard anyone speak about this, but there are some teaching universities that appear to do a lot of testing for MG drugs. Possibly you could go to one of them for their opinion. If anyone has gone this route, I’d love to hear if it has helped.
Robert