• Community Member

    Member

    Not sure where you live but you need a new doctor.  Try to find one that specializes in MG.  I was diagnosed in 2020 and have been on prednisone the majority of that time.  Mestinon helped a little in the beginning . I was on IVIG for a little over 2 years.  Started at every 4 weeks and then to every 3 weeks.  I had to stop the IVIG to join a clinical trial but still on prednisone.  I’ve failed cellcept and Imuran due to side effects.  I’m now in a phase 2 clinical trial.  I won’t know if I’m getting the drug or not until the end of August.  But I can tell you that my symptoms are now worse than bei started the trial.  I have to decide whether to stay with it or quit and try something else.  Wishing you the best but please find another doctor.  Im also in the medical field.