• Community Member

    Member

    I was diagnosed with MG 5-8-18 and found out I had thymoma, had Vats procedure to remove it on 5-18-18, I was 57 years old. It was stage 1 AB , encapsulated tumor. I have yearly scans to make sure it hasn’t reoccurred. Thank goodness it hasn’t. My symptoms got worse after my surgery, although I recovered quickly (2 Days) after my surgery I was home.I’ve been on multiple treatments over the years. Started with oral meds, prednisone. Imuran, Cellcept, mestinon of course, IVIG, Solaris, Vyvgart and recently Ultomiris. My eyes have always been drooping, along with muscle weakness, shortness of breath, fatigue etc. they are all better and I did have an eyelid lift which made a huge difference. I still work as a nurse and do my best to keep going. Keep the faith everyone!