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I failed to mention, that I also have had MG for 30 years. Various different stage over the years. That is why I finally retired. I was found out in 1992 that I had MG and had to retire in 1993. Started my own plumbing business in 1999 and then had to retire again in 2014.
I have had IVIGG, Plasma Pheresis, steroids, Soliris and am now on Ultomiris. It’s not working good for me, so back on Soliris. I’m also on Mestinon 60 mg three time daily, Mestinon 180 Timespan three times daily. Cellcept twice daily. I’m stable for now. Good luck with your treatment.