Myasthenia Gravis News Community › Forums › Research and Clinical Trials › Agent Orange Exposure and MG › Reply To: Agent Orange Exposure and MG
-
Community Member
Member“Nexus Letters are letters written by medical professionals detailing the connections … List (exposure to radiation, Agent Orange, Camp Lejeune water, etc.) …”
These letters are somewhat hard to come by. They can be purchased on line from $400.00 to $2000+. Most Medical Doctors do not want to write them as they have to say…the person “more likely than not” got the disease from exposure to Agent Orange. Most Drs. are not aware of the studies and cases, so they can not make “the” statement in good conscience. Neither my VA PCP or Neurologist was willing to make that statement.
These letters are supposed to be written by professionals/experts after a complete review of the medical records and the patient.
In my case the Appeal was Denied because I did not have this letter. I supplied a couple of studies from the NIH that showed linkage between herbicide exposure and gMG, but the Regional Office did not accept them because a Dr. did not say…”More likely than not this patient got gMG due to the Agent Orange exposure”.
Scott