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This is a big question for me. Since I was diagnosed, I continue to take the same dosage of 3 x 60 MGs = 180MGs daily of MESTINON and 2 of 500 MGs twice a day = 2000 MGs daily of CELLCEPT.
My symptoms started 7-25-2019 and after 8 months of CLUELESS DOCTORS not diagnosing me, I was finally diagnosed on 3-25-2020, by a third floor nurse, who recognized all of my MG SYMPTOMS and talked a hospital doctor into giving me a NEURO-CONSULT and three antibodies tests….. I was so SERO-POSITIVE that they repeated the three tests … to confirm they were accurate.
I have been in MG REMISSION since I left the fifth hospital on BLACK FRIDAY 11-27-2020. People talk of bad side effects …. but what is KEEPING ME SAFE … and what is KEEPING ME ill with still horrid onset insomnia and not getting 100% hearing back after TOTAL SPEECH and HEARING LOSS for 4 months due to sedative and antibiotic OTTOTOXICITY ??? SO I take my pills RELIGIOUSLY … to STAY SAFE. So what am I doing right ???? I have had only my original 5 days of 5 hours of IVIG, upon my diagnosis FINALLY … so why am I in better shape that most everyone … in the FOUR MG SUPPORT GROUPS that I ZOOM with?
Does 2000 MGs of CELLCEPT keep me safe? My new Endocrine doctor killed my STEROID PREDNISONE, that with STATINS, that another doctor dumped in me … gave me weight gain, INSOMNIA and MEDICALLY INDUCED DIABETES II. That great doctor also tapered and stopped all the LANTUS PRODUCTS that the hospitals were shooting me up with … so my prick scores are 70 to 113 … with A1C of 6.1 … so he killed that too, and I am only on 1Mg of Glimipride a daily. So are my drugs different than your drugs … so I only have INSOMNIA and some hearing issues … after 4 months of 100 % hearing loss in first 3 hospitals due to a combo of sedatives and TOBRAMYCIN ??? So I am safe … but why? I have a TERRIFIC old school MG NEUROLOGIST, who is keeping me safe … but all my other doctors I have to constantly educate them about MG … and why my blood tests are constantly irregular/anemic … due to my IMMUNO-SUPPRESSANT THERAPY meds.