Myasthenia Gravis News Community › Forums › Life Hacks and Tips › MG Crisis Frustrations › Reply To: MG Crisis Frustrations
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MemberWhen I went into crisis years ago, I was initially given a high dose of prednisone. This helped with the breathing, but I kept getting worse in other ways..weaker, then couldn’t swallow – needed a feeding tube. My doc wasn’t doing anything- said the pred will kick in. Even the residents were saying I needed something else. I was finally given plex. 5 treatments didn’t work- they wanted to send me to a nursing home. The respiratory doc pushed for a 6th round over the objections of my neuro..thankfully that did the trick. I was in the hospital for a month. My veins were horrible- the blood would clot before they got enough out to test. The whole thing was a nightmare. I think I have ptsd from it..