• Community Member

    Member

    When I went into crisis years ago, I was initially given a high dose of prednisone. This helped with the breathing, but I kept getting worse in other ways..weaker, then couldn’t swallow – needed a feeding tube. My doc wasn’t doing anything- said the pred will kick in. Even the residents were saying I needed something else. I was finally given plex. 5 treatments didn’t work- they wanted to send me to a nursing home. The respiratory doc pushed for a 6th round over the objections of my neuro..thankfully that did the trick. I was in the hospital for a month. My veins were horrible- the blood would clot before they got enough out to test.  The whole thing was a nightmare. I think I have ptsd from it..