Myasthenia Gravis News Community › Forums › Life Hacks and Tips › When Have You Felt Most Rare? › Reply To: When Have You Felt Most Rare?

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    As you’ve noted, trying to explain MG is difficult, it’s a puzzle to clarify.  Even friends do not understand, they comment that I look ok, they have forgotten details about strength, and stamina, and I don’t say much. Most don’t recall detail about others… unless they are close or are exceptionally empathic. After years of Covid it’s  hard to find others with time and compassion. I notice support groups for other issues that a lot about other illnesses is also misunderstood. I’ve been told I’m lucky to have MG as it is so invisible. So that’s been my experience, I’m not one to argue or debate with others about it. Thanks for this forum. Take care!