Reply To: Are there financial resources to help with the high costs of MG care?

[Community Member]

Maybe it is the difference between an Advantage plan and a Supplement but I have not paid a single cent for my Soliris treatments.  When I was on Soliris the only thing I paid for was the required Meningococcal vaccinations. The hospital billed Medicare and my Supplement $70,00 every two weeks for almost three years and I never paid a penny.  Now for my Ultomiris the hospital bills $180,000 every eight weeks and no change.