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Another element that I truly believe needs to be addressed: according to our doctors at Stanford Children’s health, no research tracks kids with MG after they become adults.
Two years after his first crisis, my son is now off the prednisone and in remission. During our last visit, the doctor told us that a large percentage of kids go into remission, but they do not know precisely because there is a lack of data after they leave pediatric neurology.
How is that even possible with current technology? We should be able to fix that and start tracking it now to help the future generation.