Myasthenia Gravis News Community › Forums › Healthcare and Treatments › Vyvgart side effects › Reply To: Vyvgart side effects
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Community Member
MemberI’m 62 and was diagnosed 1 year ago with full blown MG symptoms that all exposed themselves over a two week period..
After 3 months of trying to find a a doctor to fully diagnose my MG, they started me out first on an IVIG of <span class=”s1″>Gamunex that work very well for me compared to Vyvgart. I Felt much stronger and less anxious from Gamunex but we couldn’t control the severe migraine side effects from the </span><span class=”s1″>Gamunex and it consisted of 3- daily infusions at the end of every 30 days.
Due to my job travels and working around 30 day infusions, I became more attracted to Vyvgart infusions on every 60 day intervals. Turns out most my MG symptoms was returning in 40-45 days so we moved it to every 50 days and all my neurologist will allow for now. I’ve also notice that I pick up colds and flu’s easier in that same 40 – 50 day period and learning to stay away from the public and travels during that time.
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I have experienced both respiratory and infections symptoms that may be related to Vyvgart and have stayed in the hospital overnight twice in the past 9 months due to low oxygen levels when staying at my cabin at 7000’ elevation in Utah and I was put on home oxygen as needed which is mostly at night around any high elevations such as my cabin… My respiratory concerns also initiated a move out of our home in Utah County at 5500 ft elevation to less than 1000 ‘ foot elevation in Nevada. I don’t require any oxygen at this level unless I’m fighting a cold etc.
I also had a knee operation over a year ago still struggling to get the superficial wounds on top to heal, other wounds are noticeably taking much longer to heal. I had a foot rash infection Around my ankle about 6 months ago that I’ve never had before and cleared it up quickly with a prescription and over the counter medication.
To be Fair, I cannot attribute any of this to Vyvgart itself because my doctor wasn’t sure what is causing these issues either and as he mentioned a lot of these things could be directly related to just MG itself not to mention I’m no spring chicken at 62 years old.
All that I can really share is that I haven’t had any of these type of issues since the last nine months and Vyvgart is the only change during this period other than my MG itself.
On a positive note, Vyvgart has been a game changer for me as well and I’d much rather be on Vyvgart and deal with a few side effects versus dealing with all the challenges of MG without any treatments and would highly recommend Vyvgart to anyone from my experience. Just sharing my two cents if it lends value to your question and anyone else’s experiences…
<p class=”p1″>Best of luck with your Vyvgart treatments…!</p>