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Hi
So, I was diagnosed about a year ago although I think I had ocular myesthenia prior to my diagnosis. I recently read about people experiencing breathlessness and sweating. Oh, my gosh! So THAT”S where that comes from!. Oh, sorry This is the mood and medication site..
yes, antidepressants and mg meds. I know I HAVE/NEED to take the antidepressants for the rest of my life. There is a noticeable different for me if I don’t. I take bupropion and escitalopram.
The mestinon made me crazy with side effects so I was able to go off of it. The downside is my left eye goes to sleep/completely shut before the rest of my body wants to. It’s 4pm and my eye is almost closed…but it’s worth not having the side effects of the mestionon.
Is it the prednisone that is causing unpredictable sweating and breathlessness? OR the disease itself?
I get reminded constantly by well meaning friends that I am 1. breathing hard, 2. must be out of shape. or asking me, “Are you ok?” It’s great that they care but it’s uncomfortable as well, right?
The sweating is very embarrassing as it is random and not my whole body..but as though a faucet was turned on at the top of my head and running down my face. Seriously! it’s not normal sweating..
I was singing and left the stage in the middle of the song while the keyboard player kept playing. I ran to the restroom and stuck my head under the water then came back and finished the song. IT only was a moment’s relief because it started all over again.
I am grateful to still be able to sing. I’m afraid of what’s to come. I have now generalized mg, my jaw is tight and my TMJ is more severe. I sometimes get stabbing pains when I chew. I don’t have the problem yet with swallowing but chewing is definitely tiring. I just can’t open my mouth as wide and it’s small to begin with.
Yesterday I had NO energy…the day before I got a lot done because it was a good day. I am learning to take advantage of those days.
OH, someone wrote about oxygen and breathing. I do use a cpap for apnea and I really like it. I’m sure it’s very helpful now that I have the mg diagnosis as well. Someone wrote that the cpap didn’t work because theirs didn’t let you exhale on your own. Mine does.
Ok..so yes, I’m complaining today….I got a new prescription for glasses just 2 months ago…not working for my left eye now. I seem to go along and then I am made more and more aware of mg in my daily life.
I’ve only told my siblings and a few close friends…not my mom or my kids..(mom’s 95 and I take care of her…I would become her next “project” if she knew)
oh, starting to get more headaches…I never really had many….anyone else?
Thank you everyone…
I check in only occasionally with my counselor now.I think I may try someone new.
and I’m looking to find a new doctor….one who has more patients with mg.s
I did ask her about going off prednisone for a non steroid treatment but she said that the list of 7 I showed her had many more side effects.
thank you…let me know if I’ve violated forum rules..as my topics were varied…perhaps they should have been on my profile page?
THank you so much for this site. Sincerely, michele
oh, I realize, especially since taking care of mom…even if I don’t have a lot of energy..I need to get “off campus” daily…even if it’s just a car ride to a scenic point.