• Community Member

    Member

    43 Male.  Diagnosed 1 year ago.  All the same breathing issues you all describe.  Just pulling out of an exacerbation that lasted 3 months where I was forced to take leave from work.  Hospitalized in July for shortness of breath, especially at night when in bed.  Spend a month sitting up at night in chair.  Definitely the MG.

    Also,  my flare up was caused by reducing my corticosteroids too quickly thinking the IVIG was enough.  This is dangerous.  Now on Ultomiris for 2 month with miraculous results.  The pressure on the chest and sweating is a symptom of the steroids more than the MG.  Overall dirty gross feeling hard to explain unless you are one of us.  Not like the common weakness of MG.