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I’m 62 and have only had MG a year now and was diagnosed with the majority of MG symptoms so I have seen many doctors in a short time but overall it still feels like being just another sheep in the band-aid lines with most of the medical professionals that I’ve come in contact with… The medical field as a whole still doesn’t know or understand a lot about MG as it is a rare disease but it’s also been around a very long time in several countries for the few that’ have had it throughout these periods… As more people are diagnosed with MG, it appears we have seen more medical transparency and research progress in just the last 5 – 10 years alone and appears they are getting better and closer all the time…
It also should be noted that MG comes with several related ripple effect type symptoms that require many other medical related services besides your Neurologist and family doctor… Most of them might have heard of MG but still can’t spell it yet sort of speak… They all try to do the best they can based off their medical specialties and their limited knowledge of MG.
So far it seems like there are no long term remedies from these specialty Doctors and feels like they’re just applying another band-aid fix in the battle of the MG war… In other words their specialty services are all they can provide until they find a cure for MG itself. Not to mention that most good Doctors are in very high demand and too overloaded to find time to broaden their knowledge and provide quality patient time and services…
As Covid winds down, I would hope that those doctors that departed from the medical profession during Peak Covid will return soon along with those still working can catch their breath to lend better quality time to research and providing better quality and productive time with their patients.
Through the rapid journey to develop a vaccine for Covid, the medical field should have learned a lot more about autoimmune symptoms and related type diseases. I sincerely Hope that with Gods speed it will generate better knowledge and medical options to better pursue a cure for MG, MS, ALS and other autoimmune related diseases… Just not sure MG has enough transparency yet to qualify for “Warp Speed” vaccination at this juncture and glad they’re taking their time to get the cures for MG right without all the side effects… Just my Two Cents…
Mark