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I’m seronegative, SOB mostly on excertion, except when real bad. At end of day the SOB will increase as ALL the muscles fatigue out. Prior to dx, I saw multiple cardiologists and pulmonologists, and they all scratched their head as all my tests were great. Kinda good to know. Now that I am on a good treatment regimen, vyvgart, 7 mg prednisone and mestinon 60 mg 4-5 times a day, I’m able to mostly manage even the SOB. Though we have weather change now and that will affect me. I also feel I need to wear loose clothing or otherwise the tightness makes breathing more uncomfortable. Much like one with COPD.
When I’m fully exhausted, at the end of the day, needing treatment, And have pushed too far, I will collapse on the bed, SOB and it can take 20-45 minutes for my breathing to become normal again.we’re all a little different but it’s helpful to see the commonalities.