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I am on Rituxan every 4 months IV now with low dose Prednisone, Mestinon 60mg 3 x’s a day, and IVIG every 3 weeks by Infusion RN. Imuran caused me so many side effects I was miserable and no quality life. I had to get off of it. I was in the hospital 3-4 times a year until Rituxan. I am grateful to feel better since Rituxan the best I have been in 5 years. I have had Plasma exchange had relief of symptoms but it was not lasting more than 4-6 weeks. There are other chemo drugs in use to treat gMG and new ones on the horizon. My neurologist is awesome and has 100% of my trust. I am grateful to be diagnosed and have a treatment team that listens and are aware of all treatment modalities currently used and under studies.
I am so grateful of Methodist Hospital Neurology in Houston. I went to 3 hospitals with Neurology before I was able to get a diagnosis. It should have been an easy assumption with Stage II Thymoma and Sternotomy for the cancer to remove it. It wasn’t.