Myasthenia Gravis News Community › Forums › Additional Resources › Hey all! › Reply To: Hey all!
-
Community Member
MemberThank you for the input, Tom and Michelle!
Tom, I go to Lahey, which has merged with Beth Israel. I am trying to stay outside of the BILH world for the rest of my journey on this, after my brain MRI in two hours. I have found a new PCP and identified a good Neuro local to me that I will reach out to. My first task is today’s MRI. My second is a visit with the new PCP and get her thoughts. Then the new Neuro. At the same time I am seeing an Endocrinologist for my hormone treatment and I will ask to have my thyroid tested as a lot of the symptoms are similar between thyroid and MG. Also, my mother had her thyroid removed back in the early 70’s.
Edit: I have noticed that I feel worse in the heat. For example, my legs turn to jello quickly when I walk, but today and Thursday were cool and walking wasn’t bad at all until near the end of my walk. Similarly, I was in a hot room at work the other day standing and wanted to pass out I was so light headed.
I appreciate all the support very much!!! One last question; I have read that if you have the antibodies in your blood then you are positive for MG. The amount doesn’t dictate the severity. Is this true?
Happy Saturday everyone!
Paul