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I have been on Soliris for approximately 3 years and before that was IVIG infusions. With IVIG it was tried to extend out a week before the infusion and after 2 weeks added between infusions I had to go back on IVIG at the same infusion schedule. Doing the paperwork with my doctor, I was approved to Soliris and this has kept me in check and having no signs or problems with MG.
When I got the first of the claim statements and what was paid by BCBS I was just astonished by what was billed and what BCBS had agreed to pay. Being on Soliris I have had no reactions to it while being embarrassed by seeing the claim statements and my employer is having to pay for health insurance. At the first of the year, I had the surgical procedure of Thymotic done so that I hoped in the future that I would go into remission or reduced and not have infusions or medications.
Being on this infusion therapy with medication has delayed me in going into retirement.