Reply To: Multiple Diseases with MG

[Community Member]

I have been in REMISSION from my ACUTE OCULAR MG and ACUTE GENERALIZED MYASTHENIA GRAVIS since 11-27-2020 … after I left my fifth hospital of 2020.    No a single doctor was able to diagnose MG  .. despite having every single symptom.   I was finally diagnosed by a third floor nurse,  who had been in the wards long enough to recognize my MG symptoms.  It took me 8 months to be diagnosed. Every doctor was cluelessly educated, I was finally diagnosed and  have been in remission from ACUTE OCULAR MG and ACUTE GENERALIZED MG.

I had my original five hours of five days of IVIG at the start  … and have been on CELLCEPT 2000 MGs daily and MESTINON 180 MGS daily ever since.

I was on that NASTY STEROID PREDNISONE at the start  … but it gave me HORRID ONSET INSOMNIA, a huge weight gain (lost 43 lbs in 6 months being undiagnosed beforehand), and the PREDNISONE along with the STATINS drugs   ….  they were giving me   ….  gave me MEDICALLY INDUCED DIABETES II.

But I am in DIABETES remission, as tapered off PREDNISONE  by 11-27-2020,  and off shooting up with LANTUS shots since they were tapered off on 10-25-2021.

So my current disease duo is MG and ACUTE ONSET INSOMNIA  … and I am still trying to find a REAL doctor, who will analyze my three in lab sleep studies and fix my insomnia.  My doctor referred me to a sleep study facility  ….. not to a DOCTOR  ….. so my ALL STRIPES RARE DISEASE RESEARCH GROUP has found over 792 missing medical documents  … and my three LAB STUDIES to translate still.  They also located my missing three types of ANTIBODIES tests  …binding, bonding, and modulating  … all were over the ROOF… so I am SUPER POSITIVE MG.