• Community Member

    Member

    Thank you for the response

    he started having symptoms in 2009 but wasn’t diagnosed until 2017.  He has tried all that you have mentioned.  Some he had major reactions.   He did Plasmapherisis with no change.   He did IViG with some improvement but he started having major reactions so the doctor stopped.   After that he tried Chemo but had to stop because of high liver functions.  He is on he’s 4th dose of Vyvgart with no change.

    we actually went to Mayo a few years ago and that doctor gave our doctor high marks do we decided to stay.

    just wondered if anyone out there 1) caught the disease late in the process 2) tried all medicines. 3) seronegative and trying Vyvgart

    Thanks for any input anyone can share