Reply To: Neck Weakness and Pain

[Community Member]

I have the opposite of drooping head syndrome, where I lift my chin up 24/7 even in my sleep and am not always aware that I am doing it.  Not only do people stare and make fun, I also experience constant neck pain. Only diagnosed with ocular MG but few years into disease, I started having neck and bulbar weakness (tired from chewing food too much). Neurologists never offered a solution and did not diagnose me with GMG (one said my chin lift is due to eyes weakness and am compensating). I will try ice pack and massager..