• Community Member

    Member

    My wife was recently diagnosed with MG, about 2 months ago. While her initial symptoms were primarily ocular, in the past two – three weeks, they have gotten worse. She is experiencing weakness in her shoulders (can’t lift her arm above her head), neck weakness (dropped head syndrome), and difficulty swallowing (which impacts her taking her medication, Mestinon 180 mg time-release). I have a few questions that I hope the forum members may be able to answer or advise. First, is this rapid increase in serious symptoms unusual or typical (my wife is 70 years old)? Second, are there any suggestions (in addition to William’s) on how to regain strength in the neck during the day? Third, has anyone used a neck brace for the dropping head syndrome, and if so, is there a type or brand that you would recommend. These are very scary times for us, and we are so glad that there is a forum and organization that provides so many needed answers to our concerns.