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Myasthenia Gravis News Community › Forums › Research and Clinical Trials › Actual Results using Vyvgart › Reply To: Actual Results using Vyvgart

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    Mark we seem to concur on our experience using mestinon and prednisone with VyVgart.

    im down to 7 mg, slow go, but neuro figures I’ll remain on 5 mg which is a dose that supposedly does not damage the body.
    cycle 3 infusion 3 Friday. Live it.

    and for anyone reading. I’ve been told, we all will differ as any treatment and it does not cure, it improves.

    My QOL test has gone from 11/13 to 3.5/5 my days still vary and I can still  burn myself out and need  a day to chill and perhaps nap. But I’m in retirement so that is fair, right?

     

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