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Claire-
if you review the trials, most patients continue with some co treatments. Generally prednisone and mestinon.
Depending on your symptoms, reductions should be done slowly when and if needed.
i still and likely plan to use Mestinon as a supplement for ocular symptoms for a long time as that is the one thing VyVgart is last to help.
Im down to 7 mg pred. Hoping to go to 5.But I’m not going to spoil the combo right now after 3 cycles on VyVgart. Remember it is still new and the cumulative effect is unknown and individual. That is why there is a minimum of 52 days from start of cycle to being able to get the next cycle. Some may go 8 weeks after a cycle, I’m on an every 4 post infusion #4, if that makes sense. My doctor wants me to go to where i begin getting symptoms again, which i did the first cycle then crashed hard, so not really thrilled on that idea. This is a FDA / VyVgart directive. It is super well controlled. It is also based on weight for each infusion.
I hope that info is helpful.it is a good idea to read the trials for yourself as it contains a lot of good info. There is a patient side as well as doctor side.