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Myasthenia Gravis News Community › Forums › Healthcare and Treatments › Soliris (Eculizumab) and MG › Reply To: Soliris (Eculizumab) and MG

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    I’ve been on it since July 2019. It worked wonders for me. I went from using a Walker to hiking and even ran my first 5K!

    The downside is the every two week schedule. I was unable to travel, although so was the rest of the world due to COVID. And I do have restless legs syndrome side affect.

    I’m switching to Ultamiris this next infusion. Simply because I will be able to go every two months after the two load doses. This is huge for me as I love to travel.

    For those that haven’t tried Soliris I highly recommend it!

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