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I hope the FDA is working on allowing us Seronegative patients access to the new drugs. It is not fair that we have all the same symptoms. I am getting off long term {1 yr} high dose,[100mg now down to every other day 20mg] Prednisone, Mestinon doesn’t work for me any more, on 2500 mg Cellcept daily. I have Ptosis, blurry vision later in the day and muscle weakness after short term activity. It appears after a year, the Cellcept isn’t helping me much.
Please, we seronegative patients need help too!