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When I was on IVIG my infusions took 3-4 hours to complete. The infusion center was able to give me a room to myself so I had peace, quiet and privacy. The only side effect was fatigue. I soon moved on to Soliris which only takes 35 minutes to infuse. In some cases I spend more time waiting on the pharmacy to mix the solution.
I am now awaiting approval to switch to Ultomiris which is only administered every 8 weeks. Fortunately I have very good veins. Switching to Ultomiris hopefully will preserve my veins even longer. Right or wrong I see not getting a port to be apart of my battle to preserve my way of life and refuse to give in to this disease.