Myasthenia Gravis News Community › Forums › Relationships and Social Life › Do You Speak Up if Someone Offends You Talking About Your MG? › Reply To: Do You Speak Up if Someone Offends You Talking About Your MG?

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    First off, offended is a very strong word; I never find myself getting offended. MG is a very rare and unknown disease. How do we expect our friends, family, and others to understand what we are going through? It is not a one size fits all disease. I do like to hear ideas that could help symptoms I have. For example, I was told pineapple juice helps phlegm which I was having a lot of. It worked. Not all suggestions are as helpful. I have a number of neighbors who one day told me as a group, that I needed to walk, exercise, and lose weight. They said that would allow me to get better. Instead of being offended, my wife and I printed a handout explaining what MG is and how it relates to me. We gave the handouts to them telling them to read at their leisure. Everyone approached us later saying how informative the paper was, what a greater understanding they have, and thanked us for taking the time to do it. We now have a blog that explains MG and how it relates to me personally. We refer folks there when they have questions.