• Community Member

    Member

    Hi. I had a thymectomy 42 years ago when they opened up your breastbone etc and it was a major operation with a long recovery period. I know that can do key hole surgery nowxwhich is a godsend. However, i am absolutely in shock to see a trial where you wouldnt know if youd had the thymectomy or not. It sound extremely weird. Its only a theory still that a thymectomy may have a significant effect. Im 42 years sown the line and had my 3 worst MG crisis’s in the last 18 months or so. My Neurologist cant say for certain if the Thymectomy played an important role with my MG (generalised) from the start. Where is this trial taking place…? Also, why would a company need to do such a trial when there are 100s of MG patients that could fill out a questionnaire so easily and explain what a theymectomy did or didnt do for them. Id forget this trial and push with your Neurologist for a real Thymectomy if you feel it may be of benifit. Even psychological benefit is better than not knowing if youd actually had the operation. 🤔😬😲 Good luck tjo and take care. X