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I have had MG for 4 yrs and currently have terrible right eye drooping, I also have occasional double vision which limits my ability to walk easily. When I am in a group of more than 3 people or outside in the sun ( I always wear sunglasses) my right eye droops even more and it’s difficult to focus and participate in a conversation unless I close my eyes. I can no longer drive as of now and have lost my independence, which makes me very sad, my husband drives me everywhere. We recently had a small birthday party for my grandson at our house and my husband was doing all the work. I attempted to help as much as I could but my eye kept closing. No one in my family offered to help and my husband told me to sit and he would do it. I know because I don’t “Look sick” people think I am lazy. I have overheard comments like that on several occasions. I have tried to explain my situation to my family in the past but they don’t seem to understand. I have lost most of my friends because between my eyes and covid I don’t see them much and they stopped calling or inviting me out. I am on prednisone 20mg daily, mestinon 90 mg 5 x day. I had been on IVIG weekly which I never responded to ( I was on it for 6 mo) and now I recently started vyvgart and hoping I get some relief. I don’t know what else I can do? MG can definitely be an isolating disease. Thank you for listening. Natalie