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I completed my 4th infusion of vyvgart last week.
about half way into the 2nd infusion, I began noticing subtle things. Less naps, forgetting mestinon.
Then 3rd and 4th infusion, those and other “subtle” changes.
after the 4th, the next day was a big improvement. Not like ready for a marathon, but gradual daily improvements. Much like the snowflake description of our disease. Not every day the same but of course the more I do, a couple days later I might get pretty tired. Much different though.
note when you have had the disease for 10 years, we naturally schedule our time so this habits don’t disappear immediately.
I am convinced there is a significant improvement. If it had to out a number to it, I would say I am 70-75% better, maybe a little more. Hardly any SOB, few and shorter naps.
I can go all day, sometimes till 11 pm.I’ve been told that it can take 2 or even 3 cycles before a patient might experience improvement. But it is real.
I hope this becomes available to all Seronegative patients. It’s worth the opportunity.‘absolutely no side effects.
down to 7.5 mg prednisone.
i have to remember that reduction will cause MG like symptoms.
good luck to all.