• Community Member

    Member

    Ok, I’ll start the conversation.  I have had gMG for around 30 years.  It began with my eyes, then gradually affected all my muscles until I was disabled around 2006 when I saw my neurologist and was diagnosed in 2006.  My husband is disabled and uses a walker.  He is very understanding about my MG when it comes to sex.  We communicate openly about sex and discuss it a lot.  I think that is extremely important to a healthy relationship.  He knows that I can only do so much physically, then I can do no more.  When I feel I am at the point I cannot go on, I either switch up what we’re doing, or if laying down I just relax and go limp. That way I don’t have a crisis in the middle of sex.  It is sad to me that I can no longer do some of the things I used to do, like ‘riding on top’.  My legs just are not strong enough to do that anymore.  So we just do other ways.  I find with MG in general that I have to find different ways to do the things I used to do, or do other things instead.  Yes, it does affect my confidence and self esteem, but I do not dwell on what I cannot do and allow it to make me depressed or upset.  We have a great sex life in spite of our limitations!