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That’s so true Amy! Advocate for the treatments you need. I’ve been fortunate to have a doctor who is very proactive in helping with the insurance issues. Also don’t blindly pay hospital bills. They get deep discounts, talk to the billing folks and you maybe able to get additional discounts.
Waiting for medications known to work off label needs to be speeded up to get those drugs onto approved formulary lists.
Stay strong and stay safe!