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I had a thymectomy 26 years ago. It didn’t put me in remission, but it may have made the MG more manageable. That said, I think that’s a bazaar clinical trial. They would have to make an incision in your body to make you think you had a thymectomy…right? No way would I do that. I’m with you and absolutely 100% would want the thymectomy and there would be zero guilt about not participating in that study.
I understand the need for clinical trials, but honestly, give me the medicine! My MG definitely will not get better without treatment and will get 100% worse. Lucky dog if you’re the one that gets a placebo and you get better. Unfortunately, I don’t have the kind of luck.
I don’t feel that I could ever participate in a clinical trial because of the risk of getting a placebo or the therapy being tested doesn’t work. I don’t want to have to deal with a flare…I have a miserable time dealing with double vision. Anytime I had flare, it would take almost a year for all my symptoms to be almost back to normal.