Reply To: Actual Results using Vyvgart

[Community Member]

Paula, also weaning off prednisone is very tricky and can cause significant symptoms, known as rebound effect.
muscle aches, nausea, fever, headache all kinds of stuff including MG symptom return.

you must go slowly.

for me, I was in 20 mg in November, I am now at 8. As you can tell I’ve dropped very slowly as the doctor initially said to drop 5 mg. Well I thought I died.

since, I’ve come down .5-1.0 mg every 2-4 weeks. Each drop I allow stabilization until I feel normal again.
it’s miserable. Sorry for the good news.

if you want to connect with me direct, I’ll share some information I found that really helped.